From Symptoms to Strength: Navigating Life with POTS

What is POTS?

Postural Orthostatic Tachycardia Syndrome (POTS) is a condition affecting the autonomic nervous system — the part of our body that controls heart rate, blood pressure, and other automatic body functions. When someone with POTS stands up, their heart rate rises sharply (by 30+ beats per minute in adults, 40+ in teens) without a big drop in blood pressure. This leads to symptoms like:

💫 Light-headedness  ❤️ Rapid heartbeat  😵‍💫 Tremors or weakness  👁️ Blurred vision  🥱 Fatigue

POTS most often affects young women aged 14–24 and can vary from mild to debilitating. The impact of this condition on employment, school, and life in general can be significant.

POTS Subtypes and Associated Conditions

POTS usually involves one or more of the following mechanisms:

  • Hypovolemic: low blood volume

  • Hyperadrenergic: excessive adrenaline activity

  • Neuropathic: nerve-related blood flow issues

It often occurs alongside other conditions such as:

  • Migraine or chronic headaches

  • Hypermobile Ehlers-Danlos syndrome (hEDS) or Hypermobility Spectrum Disorder (HSD)

  • Autoimmune disorders

  • Mast Cell Activation Syndrome (MCAS)

  • Chronic Fatigue Syndrome

POTS Triggers

POTS symptoms can flare due to triggers like:

  • Standing or sitting for too long

  • Heat, dehydration or large meals

  • Menstruation

  • Illness, stress, or poor sleep

  • Large meals, alcohol, caffeine or certain medications

  • Inactivity or “boom–bust” activity cycles

Exercise and POTS – Moving Smart, Not Hard

Exercise can feel impossible when the act of standing up raises your heart rate — yet research shows the right kind of exercise can significantly improve POTS symptoms and quality of life. The secret? Start low, go slow, and stay consistent.

How Exercise Helps

Gradual, structured movement can:

  • Improve heart and circulation function

  • Strengthen legs and core for better blood return

  • Boost blood volume and reduce pooling

  • Lift mood, energy, and confidence

Exercise acts like retraining for the nervous system, teaching it to handle upright positions more efficiently. Following a structured exercise program can significantly reduce the symptom burden of POTS, helping individuals return to their regular activities and routines.

Finding the Starting Point:

POTS is highly individual — there’s no one-size-fits-all plan. That’s why working with an exercise physiologist is invaluable. They’ll assess the individual’s symptoms and capacity, start conservatively and progress carefully.

A pacing approach is key: balancing activity with rest to avoid crashes. Keeping a symptom and activity diary helps identify patterns and triggers.

Tips for Success

  • Stay hydrated and follow a salt plan (as advised) - our EPs work closely with dieticians for optimal outcomes

  • Exercise in a cool environment

  • Increase duration before intensity

  • Take breaks, alternate positions, and listen to your body

  • Track progress — celebrate small wins

In Summary

Living with POTS can be challenging, but with patience, pacing, and the right guidance, movement becomes a powerful tool for recovery.

Always consult your healthcare provider or exercise physiologist before starting a new routine.

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